The Event

Last month Shaftesbury teamed up with Suffolk charity Red Gables, to host a social event at The Novotel in Ipswich to bring together people in Suffolk who are affected by early-onset dementia (diagnosed with under the age of 65).

Claudia’s Background

The idea for the event was birthed from Claudia Boese, who lives in Ipswich, and was diagnosed with young-onset dementia at the age of 60. Claudia spoke at the event and was able to share some of the challenges she has faced with the condition, including getting a job and regaining her confidence as (in her own words) “it is devastating and shocking to be diagnosed at a young age”.

However, she was also able to share how she has been able to shape a new life for herself and maintain a positive mindset in spite of the struggles. She continues to use the talents she had prior to the illness and teaches painting. She also keeps herself active by regularly cycling and swimming, having found that keeping her brain active significantly helps her manage the illness. “The brain likes to be challenged”.

Claudia described how she had felt isolated after receiving the diagnosis, with most of the support groups being targeted towards elderly people. She found it hard to relate to them, with her situation and stage of life being very different and decided she wanted do something about it by helping to organise this event. She said: “Some people haven’t heard about it (young-onset dementia). I’m interested to meet people my age and understand how they are taking it and how they can use the support available in Suffolk”.

How It Went

The event turned out to be a great success with over 20 people attending. As well as meeting and hearing Claudia’s story, the attendees also heard from Peter Berry: local author and keen cyclist who was diagnosed at only 50 years old. He too spoke about how young-onset dementia interfered with his work, often struggling to remember names and numbers. Yet, like Claudia, it was his positive mindset that got him through and he stressed how important his active lifestyle is in keeping him going.

After talks from the speakers, the attendees were able to ask questions and connect with one another. Staff from Shaftesbury and Red Gables were also present and able to promote the services they offer as well as building their understanding of what needs to be done to ensure there is appropriate help and support in Suffolk for this group of people.